Hey guys! I have been in this group for quite some time. I’m going on 18 months and feel a lot of you could use some good news/hope. It has taken me a lot of persistence and fighting for my health to get me to where I am. This is my timeline and medical experience. My regimen will also be listed at the bottom. I think it’s important to state that this is personalized to what MY body needs, which I highly recommend you all do. My body was in need of a lot as I have more going on than just post covid syndrome so it may seem like a lot, but it has gotten me to where I am now. Thanks in advance for reading!!
Covid pneumonia middle/end of May 2020 Primary care treated me with steroid and antibiotic. Started experiencing syncope and was asked by PCP to track blood pressure. Noticed HR was really high. Made an apt.
AUGUST 2020- Primary care had me wear heart monitor for 48 hours. Detected SVT. Sent to cardiologist. Prescribed Metoprolol.
SEPTEMBER 17 2020- Cardiologist referred me to Electrophysiologist to discuss ablation. Ordered echocardiogram, month event monitor, follow up in 2 months.
OCTOBER 19 2020-Apt with Electrophysiologist. Was diagnosed with inappropriate sinus tachycardia. Told ablation would not help. Was told I needed to “figure out what is going on in my life that is causing my HR to spike.” Prescribed Ivabradine, but without insurance is was too expensive. Continued on metoprolol and prescribed Wellbutrin for depression/anxiety
Seemed to be doing much better from October- March. Beta blocker and Wellbutrin helped me get through some really tough times. I was still experiencing POTS, MCAS, and chronic fatigue symptoms, but I tried my best to manage. During this time I saw PCP several times as well as 2 other holistic centers that seemed dishonest and just wanted my money.
MARCH 11 2021-Saw PCP about getting off antidepressant and saw Gynecologist for pelvic pains, breast pain, and rashes that started in January around the time of cycle. Was put on continuous BC for 3 months. Was taken off because of COVID and risk of blood clots as well as migraines. Was told I had cysts on ovaries and breasts. Asked to get my hormones checked and was told “it was pointless unless I wanted to be put on medication that would put me into menopause early.”
MARCH 18 2021- Covid Clinic Pulmonologist. Seen for chest tightness, shortness of breath, palpitations, brain fog. Pulmonary function test and pulmonary stress test. Chest CT with contrast and chest X-ray ordered. Everything was normal. Was then referred to neurologist.
JUNE 1 2021- ( happy birthday to me) Saw neurologist for Vertigo, Dizziness, Tingling in extremities, Jaw pain/migraines. She ordered Lupus sle panel, Vasculitis panel, Nerve conduction test, EMG Lupus panel was positive, everything else was negative. Decided not to do nerve tests. Was feeling very defeated and didn’t want to put myself through more tests. Referred to rheumatologist.
JUNE 17 2021- Saw rheumatologist. ANA titer was 1:80 and Lupus SLE was positive, but all autoimmune diseases were negative. She told me my titer is low and she does not believe my symptoms are related to autoimmune. She said “sorry modern medicine can’t help you.” I gave up on being passed around to DRS and specialists especially after being told they couldn’t help me. I stopped taking all of my vitamins and medications (with okay from my drs of course) I felt disconnected from my body and what were side effects from medications and my actual symptoms.
JULY 12 2021- First apt with Dr. Jenna Lightfoot at Ageless Wellness. Ordered tests via blood, urine, saliva—- food sensitivity test for all my GI issues (vibrant wellness), hormone imbalance test(ZRT Laboratory), and vitamin deficiency test(Genova Diagnostics). Found that I have a ton of new food allergies (leaky gut/dysbiosis), high Testosterone, high estrogen, and low progesterone, I was also deficient in several vitamins, minerals and omega 3.
Aug 27 2021- first dose Pfizer vaccine. Exhausted and nauseas for about a week.
SEPT 4-found lumps in groin, jaw pain and migraines much more frequent. Dr Jenna ordered MRI and Ultrasound
SEPT 16- MRI and Ultrasound confirmed enlarged lymph nodes and TMJ— she is testing for Lyme disease due to my joint pain.
SEPT 28- CARDIOLOGIST follow up- abnormal EKG so bubble study ordered and bubble study was abnormal. Cardiac MRI ordered ASAP
SEPT 30- cardiac MRI with contrast- diagnosed with PFO and they don’t believe it contributes to any symptoms and they just leave it.
October 12- diagnosed with Lyme. Start Doxycycline for at least 4 weeks.
Treatment- -cut out all foods that I tested positive for allergy (I eat meat, fruit, veggies) -4 iron transfusions still have 1-2 more to go -6 super Myers IV to treat my deficiencies (absorption issues) -inositol powder- support hormone imbalance -100 MG Progesterone- treat low progesterone -DIM+I3C- supports hormone imbalance -cortisol calm- supports cortisol levels -5,000IU vitamin D3 with K2 -gastroOne powder- supports leaky gut/dysbiosis -Digestxym- supports digestion and absorption -cod liver oil- treats low omega 3 -Iron Chelate 30mg -Magnesium Glycinate -Doxycycline for at least 4 weeks (for my Lyme) -Low Dose Naltrexone- for post covid symptoms (started at .5ML between 8-9pm on 2ML now; it has been 3 months) -half of Zyrtec at night- helps with sleep as well as allergies (MCAS symptoms) -saccharomyces boulardii- to support guy health while on antibiotics -The biotic complete probiotic powder
Some of the brands my Doctor prescribes for vitamins- seeking health, metabolic maintenance, pure encapsulations, Klaire labs, rosita, and ortho molecular products.
-Symptoms I have tracked over the last 18 months - Symptoms Bad jaw pain Migraines Pass out Heat intolerant Tachycardia (220 HR) Extreme Fatigue (flu like) Vertigo Memory loss Low blood pressure (85/63) Purple feet Tingling/numbing in arms and hands Shortness of breath GI issues (diarrhea, pains, blood in stool)
Have to recover from any kind of activity (sore joints) Random rashes Brain fog Hair loss Breast and ovarian cysts Leg trembling Iron deficiency Food sensitivities Light sensitivity Sound sensitivity Dizziness (similar to being highly intoxicated) and visual impairment
Most of my symptoms have improved. I believe if I didn’t have Lyme disease I would be 100 percent. LDN has been a life saver for me. It has taken 3 months to start working. I am so grateful for this community. You all made me feel like was not alone or misunderstood. This Illness can be very lonely and depressing. The last 18 months have been the most challenging for me. We are expected to live normal lives when we our bodies are literally shutting down. My kids kept me fighting. My instincts kept me fighting. Our health is everything. Don’t feel defeated and give up, things will get better. Covid can deplete you, covid can bring viruses and other diseases to the surface you may have had lingering, it can do many things and each and everyone of us is so different! Find a doctor who will check these things! Find a doctor who will fight for you! For me, Functional medicine was LIFE SAVING! I went from being bed/couch bound to being able to travel and leave the house with both of my kids in 3 months. I hope this gives hope to someone who doesn’t have any. I hope this helps give some of you direction when you feel like you have no where to turn. I’m so sorry you are going through this! Thank you for reading my story.
Hey guys! I have been in this group for quite some time. I’m going on 18 months and feel a lot of you could use some good news/hope. It has taken me a lot of persistence and fighting for my health to get me to where I am. This is my timeline and medical experience. My regimen will also be listed at the bottom. I think it’s important to state that this is personalized to what MY body needs, which I highly recommend you all do. My body was in need of a lot as I have more going on than just post covid syndrome so it may seem like a lot, but it has gotten me to where I am now. Thanks in advance for reading!!Covid pneumonia middle/end of May 2020 Primary care treated me with steroid and antibiotic. Started experiencing syncope and was asked by PCP to track blood pressure. Noticed HR was really high. Made an apt.AUGUST 2020- Primary care had me wear heart monitor for 48 hours. Detected SVT. Sent to cardiologist. Prescribed Metoprolol.SEPTEMBER 17 2020- Cardiologist referred me to Electrophysiologist to discuss ablation. Ordered echocardiogram, month event monitor, follow up in 2 months.OCTOBER 19 2020-Apt with Electrophysiologist. Was diagnosed with inappropriate sinus tachycardia. Told ablation would not help. Was told I needed to “figure out what is going on in my life that is causing my HR to spike.” Prescribed Ivabradine, but without insurance is was too expensive. Continued on metoprolol and prescribed Wellbutrin for depression/anxietySeemed to be doing much better from October- March. Beta blocker and Wellbutrin helped me get through some really tough times. I was still experiencing POTS, MCAS, and chronic fatigue symptoms, but I tried my best to manage. During this time I saw PCP several times as well as 2 other holistic centers that seemed dishonest and just wanted my money.MARCH 11 2021-Saw PCP about getting off antidepressant and saw Gynecologist for pelvic pains, breast pain, and rashes that started in January around the time of cycle. Was put on continuous BC for 3 months. Was taken off because of COVID and risk of blood clots as well as migraines. Was told I had cysts on ovaries and breasts. Asked to get my hormones checked and was told “it was pointless unless I wanted to be put on medication that would put me into menopause early.”MARCH 18 2021- Covid Clinic Pulmonologist. Seen for chest tightness, shortness of breath, palpitations, brain fog. Pulmonary function test and pulmonary stress test. Chest CT with contrast and chest X-ray ordered. Everything was normal. Was then referred to neurologist.JUNE 1 2021- ( happy birthday to me) Saw neurologist for Vertigo, Dizziness, Tingling in extremities, Jaw pain/migraines. She ordered Lupus sle panel, Vasculitis panel, Nerve conduction test, EMG Lupus panel was positive, everything else was negative. Decided not to do nerve tests. Was feeling very defeated and didn’t want to put myself through more tests. Referred to rheumatologist.JUNE 17 2021- Saw rheumatologist. ANA titer was 1:80 and Lupus SLE was positive, but all autoimmune diseases were negative. She told me my titer is low and she does not believe my symptoms are related to autoimmune. She said “sorry modern medicine can’t help you.” I gave up on being passed around to DRS and specialists especially after being told they couldn’t help me. I stopped taking all of my vitamins and medications (with okay from my drs of course) I felt disconnected from my body and what were side effects from medications and my actual symptoms.JULY 12 2021- First apt with Dr. Jenna Lightfoot at Ageless Wellness. Ordered tests via blood, urine, saliva—- food sensitivity test for all my GI issues (vibrant wellness), hormone imbalance test(ZRT Laboratory), and vitamin deficiency test(Genova Diagnostics). Found that I have a ton of new food allergies (leaky gut/dysbiosis), high Testosterone, high estrogen, and low progesterone, I was also deficient in several vitamins, minerals and omega 3.Aug 27 2021- first dose Pfizer vaccine. Exhausted and nauseas for about a week.SEPT 4-found lumps in groin, jaw pain and migraines much more frequent. Dr Jenna ordered MRI and UltrasoundSEPT 16- MRI and Ultrasound confirmed enlarged lymph nodes and TMJ— she is testing for Lyme disease due to my joint pain.SEPT 28- CARDIOLOGIST follow up- abnormal EKG so bubble study ordered and bubble study was abnormal. Cardiac MRI ordered ASAPSEPT 30- cardiac MRI with contrast- diagnosed with PFO and they don’t believe it contributes to any symptoms and they just leave it.October 12- diagnosed with Lyme. Start Doxycycline for at least 4 weeks.Treatment- -cut out all foods that I tested positive for allergy (I eat meat, fruit, veggies) -4 iron transfusions still have 1-2 more to go -6 super Myers IV to treat my deficiencies (absorption issues) -inositol powder- support hormone imbalance -100 MG Progesterone- treat low progesterone -DIM+I3C- supports hormone imbalance -cortisol calm- supports cortisol levels -5,000IU vitamin D3 with K2 -gastroOne powder- supports leaky gut/dysbiosis -Digestxym- supports digestion and absorption -cod liver oil- treats low omega 3 -Iron Chelate 30mg -Magnesium Glycinate -Doxycycline for at least 4 weeks (for my Lyme) -Low Dose Naltrexone- for post covid symptoms (started at .5ML between 8-9pm on 2ML now; it has been 3 months) -half of Zyrtec at night- helps with sleep as well as allergies (MCAS symptoms) -saccharomyces boulardii- to support guy health while on antibiotics -The biotic complete probiotic powderSome of the brands my Doctor prescribes for vitamins- seeking health, metabolic maintenance, pure encapsulations, Klaire labs, rosita, and ortho molecular products.-Symptoms I have tracked over the last 18 months - Symptoms Bad jaw pain Migraines Pass out Heat intolerant Tachycardia (220 HR) Extreme Fatigue (flu like) Vertigo Memory loss Low blood pressure (85/63) Purple feet Tingling/numbing in arms and hands Shortness of breath GI issues (diarrhea, pains, blood in stool)Have to recover from any kind of activity (sore joints) Random rashes Brain fog Hair loss Breast and ovarian cysts Leg trembling Iron deficiency Food sensitivities Light sensitivity Sound sensitivity Dizziness (similar to being highly intoxicated) and visual impairmentMost of my symptoms have improved. I believe if I didn’t have Lyme disease I would be 100 percent. LDN has been a life saver for me. It has taken 3 months to start working. I am so grateful for this community. You all made me feel like was not alone or misunderstood. This Illness can be very lonely and depressing. The last 18 months have been the most challenging for me. We are expected to live normal lives when we our bodies are literally shutting down. My kids kept me fighting. My instincts kept me fighting. Our health is everything. Don’t feel defeated and give up, things will get better. Covid can deplete you, covid can bring viruses and other diseases to the surface you may have had lingering, it can do many things and each and everyone of us is so different! Find a doctor who will check these things! Find a doctor who will fight for you! For me, Functional medicine was LIFE SAVING! I went from being bed/couch bound to being able to travel and leave the house with both of my kids in 3 months. I hope this gives hope to someone who doesn’t have any. I hope this helps give some of you direction when you feel like you have no where to turn. I’m so sorry you are going through this! Thank you for reading my story. https://ift.tt/eA8V8J https://ift.tt/3jSXVpu
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